Sunday, January 11, 2015
awaiting possible eoe diagnosis
Things have not gotten better since I last posted. I did alright around Thanksgiving but things seems to go downhill from there. During thanksgiving I was only eating gluten free fish sticks, split green pea soup, avocado, and popchips. I would also have blueberry and banana smoothies with coconut water. I managed ok. I started adding foods back into my diet and my swallowing has gotten worse. I now eat beef, coconut products, brown rice, some veggies, some fruit, sweet potatoes, and regular potatoes. I went to a hematologist to check for any mast cell issues but he doesnt think it is that unless my tryptase level is elevated which it is not. He also told me to cut out corn products and oats. So I had to stop the fish sticks along with other stuff. So far I have cut out chicken, turkey, pork, gluten products, barley, rye, oat, corn (its in everything!), eggs, soy, and dairy. It is so frustrating to feel like I can't eat anything. I went from eating whatever I want to eating barely anything. I have lost 20 something lbs in the last 2 months. I have quit working and I feel I am becoming obsessive over my symptoms. So I have cut out all those foods for 2 weeks now with no symptom improvement. I still feel like I have trouble swallowing about an hour after I eat. My IGE levels are still raised as well which is abnormal. I really wish things would just go back to normal. I really liked the way life was going before all of this. I just had an endoscopy done 2 days ago so hopefully I will get the results back in 2 weeks. I was incredibly nervous about the use of profofol but I seemed to survive ok. I really hope the diagnosis is not eoe and something treatable but I have a feeling it is going to be that.
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